Where you send your “ice bucket challenge” donation DOES make a difference
If you’ve already gotten in on the ALS Ice Bucket Challenge or are planning to, congratulations on your generosity of spirit.
Before you donate, consider the concerns being expressed that the ALS Foundation supports research that uses fetal embryonic tissue from abortions.
Father John Floeder, who teaches bioethics at the St. Paul Seminary and who chairs the Archbishop’s Commission on Bio/Medical Ethics in the Archdiocese of St. Paul and Minneapolis, offered the following statement to help people gain a better understanding of the moral and ethical issues involved:
Many human sufferings call out to us for help, and Lou Gehrig’s disease (ALS) is certainly among them. Jesus Christ and the demands of love must lead us, as Catholics, to give our time, energy, and resources to those who suffer. The awareness and contributions that have been raised because of the “bucket challenge” are a testament to that love in so many. That said, authentic Christ-like love never can accept the deliberate taking of one life for the sake of another, which the use of embryonic stem cells does. To really help the suffering of ALS in a loving way, Catholics should not only support only those organizations that do not use embryonic stem cells, but also express to organizations the need to cease support and funding of practices that use embryonic stem cells that destroys human life.
The U.S. Catholic Conference suggests donating to ALS research at several alternative organizations, including the John Paul II Medical Research Institute in Iowa City, Iowa, which is doing research in several areas including ALS, and does not support embryonic stem cell research. To donate, use the button for “Donate Now” on the institute’s main web page.
You’ve probably heard of it by now, the Ice Bucket Challenge. Those challenged are supposed either to dump an ice bucket of cold water over their head, or donate to ALS research. Most people do both, posting a video of their icy bath. It’s a stunt, but has successfully raised awareness of ALS as well as donations for research. But people should consider where their donations go and how the money is used.
ALS (Amyotrophic Lateral Sclerosis, a.k.a. “Lou Gehrig’s Disease”) is a fatal, progressive neurological disease. It attacks the nerves that control voluntary muscles, so it is sometimes termed “motor neuron disease”. As the nerves die, muscles weaken and atrophy, including the muscles for breathing; most people suffering from ALS die of respiratory failure. The cause is unknown and at this point there is no cure, and very little that can even slow disease progression.
So, raising awareness about ALS and increasing support for ALS research is a good thing. But whether you participate in a challenge or just donate to important research, where should your donation go?
So far, most of the attention and millions of dollars in donation have gone to the ALS Association. However, the ALSA has admitted that it gives some of its money to embryonic stem cell research and has no qualms about doing so in the future. (Note the ALSA page linked in the above has just recently been changed, and now notes that embryonic stem cell research “has raised ethical concerns.”)
As Rebecca Taylor has pointed out, ALSA also has given money to an affiliate, NEALS, that has given money to a trial that uses stem cells derived from the spinal cord of an aborted fetus.
That trial is being run by the University of Michigan and Emory University, and sponsored by a company called Neuralstem which uses aborted fetus cells for research (“from the donated spinal cord tissue of an 8-week-old aborted fetus.”) All of the Neuralstem trials use cells derived from abortion.
Project ALS, another charity for ALS research, also funds embryonic stem cell research.
But there are alternatives for donations that use only ethical stem cell sources!
Here are a few of my favorites.
The Midwest Stem Cell Therapy Center (MSCTC) at the University of Kansas Medical Center is only a year old, but is starting an increasing number of clinical trials and educational efforts.
One potential future trial would be using adult stem cells for ALS. Dr. Rick Barohn, an internationally recognized expert on ALS, recently joined the Advisory Board for the Center.
The MSCTC does not do any embryonic or aborted fetal stem cell research, ONLY ADULT and NON-EMBRYONIC STEM CELL RESEARCH and CLINICAL TRIALS.
HOW DO I DONATE? click the “Make a Gift” link in the left column of their web page, it specifies donation for the MSCTC.
(Disclosure: I am a member of the MSCTC advisory board)
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Researchers at the Mayo Clinic are currently doing clinical trials for patients with ALS, using ADULTSTEM CELLS.
Dr. Anthony Windebank and his team have one ongoing clinical trial for ALS patients and are ready to initiate a second clinical trial for ALS patients.
HOW DO I DONATE? there is a “Give Now” link near the top of web page from Dr. Windebank’s link above; people can specify that their donation go to his ALS research team.
NOTE that the second trial is in association with an Israeli company, Brainstorm Cell Therapeutics, that is developing the adult stem cell treatment for ALS and other neural conditions. While this is still an experimental trial, the early results using adult stem cells for ALS treatment have been positive.
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The John Paul II Medical Research Institute in Iowa City is doing research in several areas including ALS, and does not support embryonic stem cell research.
HOW DO I DONATE? use the button for “Donate Now” on their main web page
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(the following listing was updated Aug 22, 2014 to clarify the profile of this company)
The Adult Stem Cell Technology Center, LLC is a for-profit company developing new methods for growth and application of adult stem cells, and does not support embryonic stem cell research.
Click “Contact Information” in the right column of their web page and e-mail the Director to learn more about the company’s adult stem cell technology development plans.
